Living with Alzheimer's: managing memory loss, identity, and illness
Description
News of Alzheimer's disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer's, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer's are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer's diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected. Beard also examines how these perceptions affect treatment for Alzheimer's. Interviews with clinicians and staff from the Alzheimer's Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about "self-loss," "impending cures," and the economic and emotional "burden" to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer's actively and deliberately navigate their lives.
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Subjects
Subjects
Alzheimer's disease
Alzheimer's disease -- Patients -- Care
Alzheimer's disease - Patients
Alzheimer Disease
Care
Clinical Medicine
Diseases
Electronic books
Evidence-Based Medicine
General
HEALTH & FITNESS
HEALTH & FITNESS -- Diseases -- General
Internal Medicine
Maladie d'Alzheimer
Maladie d'Alzheimer -- Patients -- Soins
MEDICAL
MEDICAL -- Clinical Medicine
MEDICAL -- Diseases
MEDICAL -- Evidence-Based Medicine
MEDICAL -- Internal Medicine
Patients
Soins
Alzheimer's disease -- Patients -- Care
Alzheimer's disease - Patients
Alzheimer Disease
Care
Clinical Medicine
Diseases
Electronic books
Evidence-Based Medicine
General
HEALTH & FITNESS
HEALTH & FITNESS -- Diseases -- General
Internal Medicine
Maladie d'Alzheimer
Maladie d'Alzheimer -- Patients -- Soins
MEDICAL
MEDICAL -- Clinical Medicine
MEDICAL -- Diseases
MEDICAL -- Evidence-Based Medicine
MEDICAL -- Internal Medicine
Patients
Soins
More Details
ISBN:
9781479889808
9781479855377
9781479800117
9781479855377
9781479800117
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Grouping Information
Grouped Work ID | e08e1a5f-7f25-2f5b-337d-7ad0a1f9f0ac |
---|---|
Grouping Title | living with alzheimers managing memory loss identity and illness |
Grouping Author | renee l beard |
Grouping Category | book |
Grouping Language | English (eng) |
Last Grouping Update | 2024-04-05 21:12:39PM |
Last Indexed | 2024-04-18 00:20:15AM |
Solr Fields
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0
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author
Beard, Renée L.
author_display
Beard, Renée L.
available_at_mesa
MCPLD Central Library
detailed_location_mesa
MCPLD Central Non-Fiction
display_description
News of Alzheimer's disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer's, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer's are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer's diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected. Beard also examines how these perceptions affect treatment for Alzheimer's. Interviews with clinicians and staff from the Alzheimer's Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about "self-loss," "impending cures," and the economic and emotional "burden" to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer's actively and deliberately navigate their lives.
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Books
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Book
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e08e1a5f-7f25-2f5b-337d-7ad0a1f9f0ac
isbn
9781479800117
9781479855377
9781479889808
9781479855377
9781479889808
itype_mesa
Adult non-fiction
Non-fiction
Non-fiction
last_indexed
2024-04-18T06:20:15.048Z
lexile_score
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literary_form
Non Fiction
literary_form_full
Non Fiction
local_callnumber_mesa
616.83 B368L
owning_library_mesa
Mesa County Libraries
owning_location_mesa
MCPLD Central Library
primary_isbn
9781479889808
publishDate
2016
publisher
New York University Press
recordtype
grouped_work
subject_facet
Alzheimer Disease
Alzheimer's disease
Alzheimer's disease - Patients
Alzheimer's disease -- Patients -- Care
Electronic books
HEALTH & FITNESS -- Diseases -- General
MEDICAL -- Clinical Medicine
MEDICAL -- Diseases
MEDICAL -- Evidence-Based Medicine
MEDICAL -- Internal Medicine
Maladie d'Alzheimer
Maladie d'Alzheimer -- Patients -- Soins
Alzheimer's disease
Alzheimer's disease - Patients
Alzheimer's disease -- Patients -- Care
Electronic books
HEALTH & FITNESS -- Diseases -- General
MEDICAL -- Clinical Medicine
MEDICAL -- Diseases
MEDICAL -- Evidence-Based Medicine
MEDICAL -- Internal Medicine
Maladie d'Alzheimer
Maladie d'Alzheimer -- Patients -- Soins
title_display
Living with Alzheimer's : managing memory loss, identity, and illness
title_full
Living with Alzheimer's : Managing Memory Loss, Identity, and Illness Beard, Renée L.
Living with Alzheimer's : managing memory loss, identity, and illness / Renee L. Beard
Living with Alzheimer's : managing memory loss, identity, and illness / Renée L. Beard
Living with Alzheimer's : managing memory loss, identity, and illness / Renée L. Beard
Living with Alzheimer's : managing memory loss, identity, and illness / Renee L. Beard
Living with Alzheimer's : managing memory loss, identity, and illness / Renée L. Beard
Living with Alzheimer's : managing memory loss, identity, and illness / Renée L. Beard
title_short
Living with Alzheimer's
title_sub
managing memory loss, identity, and illness
topic_facet
Alzheimer Disease
Alzheimer's disease
Alzheimer's disease - Patients
Care
Clinical Medicine
Diseases
Evidence-Based Medicine
General
HEALTH & FITNESS
Internal Medicine
MEDICAL
Maladie d'Alzheimer
Patients
Soins
Alzheimer's disease
Alzheimer's disease - Patients
Care
Clinical Medicine
Diseases
Evidence-Based Medicine
General
HEALTH & FITNESS
Internal Medicine
MEDICAL
Maladie d'Alzheimer
Patients
Soins
Solr Details Tables
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ebraryccu:EBC4045245 | eBook | eBook | English | New York University Press | 2016 | 1 online resource (337 pages) | ||
ils:.b50671777 | Book | Books | English | New York University Press | [2016] | xi, 324 pages ; 23 cm |
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